An Exploratory Qualitative Study on Indonesian Mothers' Needs and Concerns about Having a Thalassemic Child and Its Treatment | Chapter 4 | Highlights on Medicine and Medical Science Vol. 18
Thalassemia is a prevalent genetic blood ailment in Indonesia that is considered a public health issue. In Indonesia, however, little is known about thalassemic children's and parents' general experiences with and perceptions of thalassemia. The goal of this study was to look at the concerns, beliefs, sentiments, and needs of moms who have a kid who is thalassemic. Participants were recruited from a total of (N=24) mothers. The purpose of the Focus Group Discussion (FGD) was to better understand the moms' perspectives of their needs and concerns. A semi-structured focus group moderator's guide was created to correlate to the study questions. Questions were divided into two groups in order to acquire a better understanding. I Kid disease perceptions, (ii) Thalassemia knowledge and therapy, (iii) Thalassemia impact on the child and family, and (iv) Needs and future concerns Transcripts were categorised thematically based on the study themes that emerged from the data, an...